Tuesday, April 5, 2016

Sonny




Sonny.

This is just part of the story of finding him.

The story is still being written.

And will be until he becomes ours.

And we become his.

But for now.

This is how the story to him began....


In June 2013 on a sunny afternoon, my man and I sat in the drive thru line at Jack in the Box.

Yes, a fast food drive thru.

I wish it was something more beautiful and inspiring.

Like a vision we had while watching the sunset at the beach.

Or hiking somewhere in the Columbia River Gorge.

But it's us.

So of course it all starts with fast food.

This was just two months after his cancer surgery.

And six months after bringing Noelle home.

I sat in the passenger seat looking out the window.

Afraid to make eye contact with him because I was about to ask him something crazy.

"What if I told you I think we are supposed to go back to China?"

He was silent.

And then I heard him put the car in park.

Right there.

In the drive thru.

I knew he was going to tell me in the nicest way.

Or maybe in the not so nicest way.

That I've lost my mind.

That he's just not on board.

But then he said something.

"Well, I need to tell you something too.  God spoke to me like I haven't heard in a really long time.  He told me that we aren't done.  I don't know if it's China, foster care or where or what, but I know we are not done growing our family."

And there it was.

We both said it.

Us.

Parents.

Again.

Shocked at what we both had just said.

We just looked at each other.

Speechless.

Neither of us not knowing what to say.

The silence was short lived....

"Welcome to Jack in the Box.  Go ahead and place your order."

With the revelation that we knew we would be parents again, we suddenly lost our appetites and confused the drive thru guy with just ordering waters.

August came just a few months later.

And so did the news that his cancer had spread to his spine.

Life spiraled out of control for the next several months.

As my man's cancer spread.

To his lymph nodes.

To his lung.

We only spoke about that drive thru conversation a few times in the following months.

The conversations were mostly about how confused we were.

We both felt it.

We both heard it.

That we weren't done.

But how would we ever bring another child into our family with a daddy who had cancer.

2014 brought new hope with my man's IL-2 cancer treatment.

And then his stroke came along.

And yet.

I still had this feeling I was going to be a mother once again.

My man recovered.

In record time.

The cancer was appearing to be beat.

My man was becoming a survivor.

Then some news came our way.

China had loosened up their criteria.

They were now allowing one parent to have had cancer in the past to adopt.

By this time my man's tumors were basically non-existent.

He was.

Cancer free.

And then we waited.

And waited.

Not sure what direction to go in.

We were so confused.

So very confused.

And so conflicted.

We knew what we heard.

But we were scared.

What if the cancer comes back?

What if the cancer comes back and we have a new little life in our family.

Is that fair to him or her?

But what if it doesn't?

That question kept swirling in my head.

My man confided in me that he kept asking himself the same question.

What if it doesn't?

And we didn't do anything.

What if the cancer doesn't return.

Then what?

It's called living in fear.

And to be honest.

It's how we lived for awhile.

Even when his scans came back clear.

Cancer free.

And the words.

"You're in remission!"

But we kept finding ourselves saying.....

Let's wait for the next scan.

You know, just to be sure.

And then the next scan would come back clear.

But we still found ourselves saying....

Just one more scan and then we'll move forward.

We slowly tiptoed around the world of adoption.

Quietly looking at waiting children.

Seeing if any tugged at our hearts.

Still nervous about moving forward.

Not signing any paperwork with any agency.

Only talking about it with a few friends who knew our fears.

But then.

Just five days into 2016.

I saw a face.

It tugged at my heart.

And it tugged at my man's.





It happened just like that.

I called asking to review his file.

And was told there was a list of families interested in him.

I understood and asked that we be put on the list.

In less than a week.

I got the call that we were at the top.

We were still interested?

Ummm, yes.

He has very severe heart condition.

Were we still interested?

Severe.

Yikes.

But that face.

He had me at that face.

That tiny grin he's trying to show.

Or is he trying to hide it?

Yes, we want to see the file.

Oh, and no pressure but....

"we only have his file for four more days before it needs to be returned to China."

Even better.

Pressure.

I kept refreshing my email while asking myself.

How severe is too severe?

What exactly can we handle?

I finally got the file after waiting an exhausting three minutes.

I could see there were a lot of pictures.

Of a precious face.

But I told myself.

No clicking on pictures until you find his diagnosis.

I scrolled through all the documents.

Looking.

While preparing myself.

And then I found it.

Tetrology of fallot.

The same exact diagnosis as our Reagan.

It is a serious condition.

But once it's repaired.

It can be not so serious.

And guess what?

His was repaired when he was just a few months old.

While he was in the care of Maria's Big House of Hope.

Which he lived in the first three years of his life.

We kept going over all the documents.

Scanning for what we were missing.

Why had no family already committed to this boy?

What was so scary about his file?

I contacted several cardiologists asking if they would please review his file.

I needed someone to interpret all the numbers from his most recent echos.

They all said no.

Apparently HIPAA.

Seriously.

I was told on more than one occasion that HIPAA extends all the way to China.

I was not his parent or guardian.

So the answer was no.

I called international adoption doctors and clinics for a file review.

But there was a two week turn around at best.

And before we knew it.

That four days was here.

His file was to be returned to China.

Without any answers as to exactly what this little boy's current heart condition was.

My man and I felt at peace.

To move forward.

And start the journey.

Of becoming parents once again.

And so here we are.

Please meet our son, Sonny.

Some details about this handsome little guy....
His name is Sonny Heke Daniel.  As much as my man and I love us some Sonny Bono, I'm afraid to say he's not named after the male partner of the great Sonny & Cher duo.  He's named after his late grandpa, Charles "Sonny" Meister.  I never got to meet Sonny's namesake but I am forever grateful  for the amazing job he did raising my man.   

Sonny is currently four years old and will turn five this summer.  And in addition to having the same heart condition as Reagan, he's from the same province, Henan, and orphanage, Luoyang, as her.  We hope to travel sometime late this year, we're guessing around November/December.

Since accepting Sonny's file, I was able to locate an organization, Little Hearts Medical, that reviews cardiac files of children for adoption purposes.  We had them review Sonny's file.  Sonny's repair appears to be stable.  All his numbers look good.  He may have to have a minor follow up or repair when he's a teenager, but all in all, his heart is in good shape.  

Friday, July 24, 2015

Stable and Strong

Just a year ago he was in recovery mode due to his strokes.

Strong and stable were just a distant dream.

Last month my man got some news.

I should mention that the news he got was good.

Like.

Very good.

His report came back that he is stable and strong.

His most recent body scans lead to the good news that he no longer needs to have his scans every three months.

My man has graduated to body scans every six months.


We had a cute little tag along join us at his appointment


But my man being the man that he is, asked if he come back in three instead of six months.

You know.

Just to make sure.

I love this man of mine.

He is still a work in progress when it comes to believing that his body has been healed.

And that's okay.

We are rejoicing for the news of strong and stable.

And no new scans for six three more months.


With this good news I've decided that this will be the last entry of this blog....for now.  It's been a great way to share my man's journey with family, friends and clients but we've reached a point where no news is good news and lately there has been no news!  It's been over two years since he was diagnosed with colon and kidney cancer, and what a journey it has been.  Thank you for reading and following along, but most of all, thank you for walking with us and praying for us.  Thank you does not seem sufficient but it will have to do.  Feel free to find me over on Instagram (danaemeister)  for the daily goings on with my man and the rest of my crew.

In Him,
Danae

(Rebecca of 14K, if your reading this...Hello sweet friend!  I/we think of you and the rest of the staff up there often.  Can you believe how well my man is doing?!  Please spread the good news!  -Danae)


Thursday, January 1, 2015

2014: The Ugly and The Beauty

Dear 2014,

Don't take this the wrong way.

But I'm so glad you are done.

Over.

In the books.

I will not miss you.

And I will not forget you.

No matter how hard I try.

And no matter how much I'd like to.

You won't ever be forgotten.

You brought a whole lotta ugly this last year.

And there's a part of me that's still angry with you because of it.

I mean, you just didn't cut us a break.

So much pain.



So much fear.


So much down right ugliness.


Most of that ugly was thrown at my man.

And that makes me mad.

He didn't deserve your wrath of ugliness.

Even with all that ugly he went through.

There is no one I'd rather go through life with.



Thankfully your ugly made us stronger.




It did not break us.

But you should know something.

In between all that ugliness.

There was amazing beauty.

It was hidden.

But it was there.

The beauty of a daddy consoling his girl.



The beauty of silliness and humor.....two traits that my family and I excel at.


No, make that we are experts at.....


The beauty of a body and mind restored.



The beauty of generosity from family, friends and strangers.



The beauty of home.


The beauty of one's first game ball.



The beauty of a family bond made stronger.
(photo credit: Emily Andrews Portrait Design) 



The beauty of a rainbow in the midst of a storm.


The beauty of God's never ending grace.

And the beauty of HOPE.



So as much as I want to forget you, 2014, without your ugly I might not have ever seen the beauty of you.

So be rest assured.

You will be one to be remembered.

My man ended 2014 with the good news of no new tumors.  He's gone one year with no new ones. The treatment is working.  He still has some hanging out in his lung but they are behaving....staying beautifully stable and small.

Happy 2015

Saturday, November 8, 2014

You come back?


I was running late as usual.

Trying to meet up with a friend that I hadn't seen in a couple of months.

We planned to have dessert and chat about life.

We both had lots to catch up on.

My man had made dinner.

The kids were setting the table.

I ran through the kitchen looking for my keys.

Found them in the windowsill of all places.

Gave the kids the quick "be good for daddy" lecture and was off.

I grabbed the doorknob to leave.

And then I heard her yell.

"Mama, you come back?"

Before I could turn around, I heard her running down the hall to me.

Again.

"Mama, you go bye bye.  You come back?"

My hand dropped from the doorknob.

I turned around and just stared at her.

Again.

"Mama, you come back?"

She's been home with me for over three years.

She comes to me for her needs.

She comes to me for all of her her wants.

She comes to me because I am there.

She trusts that I am there for her.

I thought that we had worked though this.

Yet in that minute of those three repeated questions.

I was reminded there is a part of her heart.

That doubts.

That fears.

That wonders.

Is mama coming back? 

I grabbed her.

Held her.

Kissed her.

Trying to hide the tears that I knew were moments away from running down my cheeks.

My throat tight.

"Yes, mama will come back."

I kissed her again.

Reassured her again.

And then went out to the car and cried.

I texted my man telling him not to tuck her in until I got home.

No matter how late.

My friend and I got caught up on just about everything that's happened in the last four months.

We decided that we need to get out more often.

There was just too much to talk about to try and fit in in just a few hours out.

I tried to not constantly check my phone for the time.

I finally pulled up in the driveway, a good two hours past her bedtime.

I walked in the house.

And I heard her feet running down the hall.

And I heard her scream.

Again, "Mama, you come back!"

Only this time it wasn't a question.

It was the announcement of sheer joy that Mama came back.


There may always be a part of my little girl's heart that wonders, doubts and fears that I won't come back.  And understandably so. At 15 months old her heart broke as she sat in a hospital bed wondering when her mama would come back to get her.  With the grace of God, her broken heart is being healed, but even a healed heart will bear the scars of a heart once broken.  

Thursday, October 16, 2014

Unremarkable and Stable.

He had his first scan since he stopped treatment.

I found myself crying uncontrollably when he went back for the scan.

I've never just lost it like that in a waiting room.

Especially for just a scan.

I think that these last few months have felt normal.

We haven't had normal in what seems like forever.

For our family, normal is crazy messy chaos but without the stress of cancer looming over us.

I realized these last few months how wonderful normal crazy messy chaos is.

And I've missed it.

Scans change normal.

Scans change routines.

Scans dictate how life is going to move for the next while.

I was being greedy and hoping that there would be no evidence, the words they use for being cancer free.

But last Wednesday wasn't the day to hear those words.

Instead, we got some really good runner up words.



Unremarkable.

And.

Stable.

They aren't growing.

They aren't multiplying.

They're doing what cancer doesn't normally do.

Just hanging out.

Being unremarkable and stable.

But guess what?

That in itself is pretty remarkable.

His treatment is working.

Life for the next three months will be crazy messy chaos.

It will be normal.

Just the way I like it.


What does normal look like for my man?  Well, he got back his driving privileges back last month.  I felt like I was letting my newly licensed child hit the road.  I was pretty nervous the first day he went back to driving the freeway but he assured me it was just like riding a bike.  He still has some very minor side effects from the stroke....fine motor, memory and word recollection.  He's now on an every three month schedule to monitor what those tumors are doing.  Everyday he gets stronger and stronger and is getting back to being the Dan the Man that he was even before the cancer diagnosis.